Yesterday my family and I went to another city that was supposed to be recreating Whoville from ‘The Grinch Stole Christmas’. This happens to be RC’s favorite movie. Needless to say this will be the last time we attend. We did get some pretty pictures. I tried to get a family picture but my hubby was being crabby and didn’t want to take a pic. Later on I found out his knee has been bothering him. I am figuring this is another attack of his gout but for now we won’t mention that. Our doctor said a shot of cherry juice a day will lessen the uric acid content in the blood stream. Now he has just got to start drinking it. The juice is sitting in the fridge, cold and ready for consumption.
RC has bee recruited for a 100 hour film festival race and I am hoping she has a blast with it. She will only be filming for one day and I have got to talk to my boss about getting someone to work for me so I can go with her. That should be interesting. Though we have some new employees that aren’t new to the field so hopefully it goes well.
I am still job hunting while keeping my cool at the current job. Things haven’t been totally bad and so it makes things tolerable. Also, I received a bonus which is good for the bank account. Just have to figure out how to swing a few things for Christmas because I don’t want to wait until the complete last minute like I did last year.
KC has been really copping major attitude lately. I think he is tired of the whole disease process and his limitations. The limitations are increasingly getting worse. He is unable to feed himself with utensils and most finger food is becoming harder. He has mentioned wishing things were over because this really isn’t worth it. That is sad to think about because he should be enjoying life but this disease has taken everything from him that he enjoys. He isn’t able to play his video games because his fine motor skills suck so much. He spends a lot of his time watching Netflix, YouTube, Hulu and some regular TV. I wish his FRDA would go away and he wouldn’t have to deal with it. It affects him and the rest of the family in ways that are unimaginable.